Rare Disease Day raises awareness and generates change for those living with a rare disease, their families, and friends. Lymphangioleiomyomatosis (LAM) is a rare lung disease affecting mainly women and there is no cure. On Rare Disease Day we are hosting a panel discussion on LAM to raise awareness and to provide an opportunity
COVID-19 Updates for the LAM Community: Outcomes, Omicron, and Other Options (This is a copy of an article posted on The Lam Foundation website on 11 January 2022) Nishant Gupta, MD | January 10, 2022 Another new year comes with a new wave of COVID-19 infections brought on by another variant of the SARS-CoV-2
It’s my pleasure to be asked to help with the December issue of the LAM Australia newsletter. What better time to jump on board than Christmas! With Corinne and Louise’s guidance, in this month’s newsletter you’ll find mention of an article on Monoclonal Antibodies from Dr Jeff Lindenmayer, pictures of Corrine’s recent fundraising event, tips
UPDATE on COVID-19 and LAM – Dr Jeffrey Lindenmayer, GP and Heather Telford, Past President of LAM Australia. Primary Courses and Boosters There has been a lot of discussion recently on LAM social media about low levels of immunity in women with LAM even if they’ve had two COVID-19 vaccinations and particularly if it’s more
Introducing our new President – Louise Lloyd Louise is living with LAM and has been for many years. Following a pleurodesis in 2004 Louise was misdiagnosed, however following a decline of lung function went through a series of additional tests and has now been correctly diagnosed with LAM. A senior leader with over 20 years’
Extract…… On August 12, 2021 the United States Food and Drug Administration (FDA) modified the Emergency Use Authorizations (EUAs) for the mRNA COVID-19 vaccines (Pfizer and Moderna) to allow for the administration of an additional dose (i.e., a third dose) after an initial two-dose primary mRNA COVID-19 vaccine series for certain immunocompromised people. This amendment
Frequently Asked Questions about COVID19 and LAM. October 2021. Dr Jeffrey Lindenmayer, GP, Melbourne Heather Telford, Past President, LAM Australia, Melbourne What is SARS-CoV-2 virus and how is it related to COVID-19? SARS-CoV-2 is a virus. The name is short for ‘Severe Acute Respiratory Syndrome Coronavirus 2’. COVID19 is the illness caused by the virus.
Meet Carol Webber. Carol is always on the move as a mom of three. She was diagnosed with LAM in 2018 and was concerned she wouldn’t be able to keep up with her energetic children. In 2018, she needed a hysterectomy and donated her uterus for LAM research. Carol’s tissue donation proved helpful to scientists