I’d like to thank everyone who joined us for the Rare Disease Day Panel discussion on Living with LAM. We had a great turnout of attendees and our panel members – Prof. Brian Oliver, Dr Deborah Yates and Ana Paula Ruiz, were just amazing. To have taken the time to join us, present and be
Read MoreJournaling is an intentional way to help you slow down, check in with yourself and practice mindfulness & gratitude. Here is a Happiness Journal outline (created by Corrine Tye-Lim).
Read MoreOral medicines to treat COVID-19 are now available in Australia. What are they? The medicines are called Lagevrio and Paxlovid. They are the first oral medicines that can treat COVID-19. Oral medicines are ones you put in your mouth, like tablets or capsules. This means you can take these medicines at home rather than needing to
Read MoreFrom Sue Sherman, Executive Director & CEO On February 28, The LAM community will mobilize to raise awareness of lymphangioleiomymatosis – one of more than 7,000 rare diseases affecting 300 million people globally. More than 90% of these diseases have no form of treatment. Here is where The LAM Foundation has made a difference. By
Read MoreRare Disease Day raises awareness and generates change for those living with a rare disease, their families, and friends. Lymphangioleiomyomatosis (LAM) is a rare lung disease affecting mainly women and there is no cure. On Rare Disease Day we are hosting a panel discussion on LAM to raise awareness and to provide an opportunity
Read MoreCOVID-19 Updates for the LAM Community: Outcomes, Omicron, and Other Options (This is a copy of an article posted on The Lam Foundation website on 11 January 2022) Nishant Gupta, MD | January 10, 2022 Another new year comes with a new wave of COVID-19 infections brought on by another variant of the SARS-CoV-2
Read MoreIt’s my pleasure to be asked to help with the December issue of the LAM Australia newsletter. What better time to jump on board than Christmas! With Corinne and Louise’s guidance, in this month’s newsletter you’ll find mention of an article on Monoclonal Antibodies from Dr Jeff Lindenmayer, pictures of Corrine’s recent fundraising event, tips
Read MoreUPDATE on COVID-19 and LAM – Dr Jeffrey Lindenmayer, GP and Heather Telford, Past President of LAM Australia. Primary Courses and Boosters There has been a lot of discussion recently on LAM social media about low levels of immunity in women with LAM even if they’ve had two COVID-19 vaccinations and particularly if it’s more
Read MoreIntroducing our new President – Louise Lloyd Louise is living with LAM and has been for many years. Following a pleurodesis in 2004 Louise was misdiagnosed, however following a decline of lung function went through a series of additional tests and has now been correctly diagnosed with LAM. A senior leader with over 20 years’
Read MoreExtract…… On August 12, 2021 the United States Food and Drug Administration (FDA) modified the Emergency Use Authorizations (EUAs) for the mRNA COVID-19 vaccines (Pfizer and Moderna) to allow for the administration of an additional dose (i.e., a third dose) after an initial two-dose primary mRNA COVID-19 vaccine series for certain immunocompromised people. This amendment
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