From Sue Sherman, Executive Director & CEO
On February 28, The LAM community will mobilize to raise awareness of lymphangioleiomymatosis – one of more than 7,000 rare diseases affecting 300 million people globally. More than 90% of these diseases have no form of treatment.
Here is where The LAM Foundation has made a difference. By bringing together our dedicated researchers and patients for clinical trials, we helped gain FDA approval for rapamycin (sirolimus), the first effective treatment for LAM.
You, too, can help us improve the lives of LAM patients. Read on to learn more about how to support our community on Rare Disease Day. I encourage you to participate if you can and to share the information with friends and family.
Please enjoy this edition of Currents-it is filled to the brim with LAM community events, news, and research updates.
To view the full newsletter ——> Lam foundation February edition of Currents.